Run for ALD, Cure the Boys! - GO! St. Louis

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Run for ALD, Cure the Boys!

June 26 @ 8:00 am - 5:00 pm

Knockout ALD is proud to present our 8th Annual Run for ALD, Cure the Boys on Nov. 23rd, a 5K/1 mile run/walk homegrown event, (with a virtual option!) the only one of its kind in the St. Louis area that raises awareness and funds for adrenoleukodystrophy (ALD).

• What is ALD? ALD is a very progressive rare disease that most severely affects about 1 in 17,000 boys, many of whom suffer severe neurological symptoms that often result in death if undiagnosed and not treated very early.

• Why? Our event is inspired by the vision of our son Nicholas who had a successful bone marrow transplant to halt the progression of his cerebral ALD at the University of Minnesota Children’s Hospital (a world leader in transplants and ALD research). 100% of the funds raised from our event will directly benefit the University of Minnesota’s Leukodystrophy Center for ALD Research to support their research efforts for early identification, more effective therapy and treatment options, and hopefully one day a cure for this devastating disease.

• How/where? Register for our in-person 5K run/one mile walk in Creve Coeur Park, at 9 a.m. (near St. Louis, MO) or register to participate virtually from wherever you are on your own time.

• How can I donate? The majority of our funds come from donations above and beyond registration…please consider making a donation during registration OR you also have the choice to simply make a donation using the donate tab. Donations may also be made by check (avoids online fees) and mailed directly to Knockout ALD, 1551 Timberlake Manor Parkway, Chesterfield, MO 63017. Thank you!

• How do I get a t-shirt? Register to walk or run in person or virtually. Registration deadline for a t-shirt is Oct. 23.

• Can I form or join a team? Yes! Our teams are a big part of raising awareness and funds. You have the option to form or join a team during registration.

Please consider joining us on Nov. 23 or donating to help Cure the Boys! Thank you!

Details

Date:
June 26
Time:
8:00 am - 5:00 pm
Event Category:
Website:
https://raceroster.com/events/2024/90510/run-for-ald-cure-the-boys

Organizer

Knockout ALD
Email
RunforALD@yahoo.com
View Organizer Website

Venue

Creve Coeur Lake, Tremayne Shelter
13725 Marine Ave
Maryland Heights, MO 63043 United States
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